19 June, 2020
03 June, 2020
Frustration
It must be hard not
knowing what to when you see me crying and suffering with pain and
frustration day in and day out, I know there is nothing anyone can do
to relieve the pain.
Sometimes all I need is
a hug and to hear you know how hard it I need nothing else.
Sometimes it is hard
and depressing to hear someone sigh or see a roll of the eyes when I
ask for help of some kind. I know no one means anything bad but it
does make me feel like I am being a nuisance or a burden.
Yes it is hard for me
struggling all day every day and I get it must be hard for everyone
to know this and and not know what to do for the best. I have no
answer for that.
If it was just the
tremor that would be bad enough but it's everything else, like the
pain in my right upper arm/shoulder area. This makes me cry in pain
and frustration and there isn't a damn thing you can do.
24 May, 2020
06 March, 2020
26 January, 2020
Turning 80
My Mum is turning 80 on
Thursday we are not doing anything just lunch with her children,
however, as many extended family members care for her I thought I
would remind you and you may like to send her a card. This would
make her very happy.
Anyone need her address
just ask.
20 January, 2020
My health update
I am slowly learning to
live and accept my limitations there are more and more things that I
have trouble doing. I have things that help me cope, as in not get
as upset and depressed when things are not working and it's just not
easy.
There are days when I
struggle to prepare food to eat, some days I just like someone else
to either prepare the even a simple sandwich at times is hard. I
haven't tried to eat cereal in a long time and ya know I have been
feeling like corn flakes lately. Last winter I tried having soup,
that ended in tears and frustration.
I have taken to using a
bath board when I shower as I find the heat of a shower causes me to
become light headed and lose my balance. I prefer to have a bath but
with water restrictions I think a shower is better as I use less
water.
Getting dressed takes
me ages three times as long as having someone assist me, this is
because I break into a sweat often during the day and no it's not
menopause that I went through 14yrs ago. So often I am all clammy
and sticky, also this causes me to stink more. Some may think have a
cool shower but I can do that and be sitting on the bed drying off
and break into a sweat again.
I have to use a walker
when I go out but only if I have a small amount of walking to do,
if I have a lot of walking to do I need a wheelchair, or a motorised
scooter.
I cannot drive so have
to rely on someone to get me from point a to point b and home again,
I have had a few episodes of confusion and loss of balance. So the
girls do not want me to go shopping alone and honestly I think often
they are right.
I used to love to read
but find it hard to concentrate and can only manage a couple of
pages at a time, it is so frustrating.
Then there are my
bladder problems which is horrible and embarrassing but something I
have to deal with.
Is it any wonder I
feel depressed and like crying.
31 December, 2019
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